tag:blogger.com,1999:blog-20591383456618763302024-03-18T18:18:04.020-07:00Spinal Muscular Atrophy CanadaAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.comBlogger148125tag:blogger.com,1999:blog-2059138345661876330.post-39716000220576765702014-05-29T19:05:00.000-07:002014-05-29T19:05:49.948-07:00New Video Of Shira's Adventures
Here's a new video of some of my favorite photos and videos of Shira from the past and recently. Enjoy. BradAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com104tag:blogger.com,1999:blog-2059138345661876330.post-51315573817889894462014-02-06T06:54:00.000-08:002014-02-06T06:54:00.652-08:0015 Things Never to Say to a Special Needs Parent
Dr. Darla Clayton, Psy.D.
Become a fan
Founder, Strong as Steel Adaptive Sports
As a special needs parent, it seems that people have a desire to
comment to me about my children, my parenting, my Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-87973429105937170592014-01-11T14:07:00.000-08:002014-01-11T14:07:22.175-08:00MASTERY OF MIND OPENS AVENUES OF HOPE
Change your attitude, look past yourself and deliver the care your child needs. Remember it's not the caregiver who is sick and needs help it's the patient. We have to move past anticipatory grief, spend time with our children that is where our healing lies in the time we spend with our children.
All that we are is the result of what we have thought. &Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-77042271622463040122013-12-31T12:52:00.000-08:002013-12-31T12:52:29.322-08:00TAKE YOUR TIME
"Personal
relationships, of course, not only take time, they take 'quality time.'
This is especially true with children, where what matters is not only
the number of hours we spend but also the attention we give, the love we
show, the extent to which we enter into the child's world instead of
dragging him or her into our own. Schedules are fine at the office, but
children have a sense of Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-25227104377061638282013-10-06T22:15:00.000-07:002013-10-06T22:15:06.472-07:00
SHIRA'S SCARY, GROSS AND REALLY FUN PLAY DATE WITH LIA OCTOBER 06, 2013
Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com1tag:blogger.com,1999:blog-2059138345661876330.post-49979891789271372642013-09-22T18:41:00.001-07:002013-09-22T18:41:38.711-07:00Shira Swinging In The Living Room
The Vestibular System is often overlooked in the over all care of patients with Spinal Muscular Atrophy. Oral therapy, standing, swinging, laying on a massage mat, vibration etc all helps develop the vestibular system. If you build your own swing make sure you secure the swing through a ceiling joist. We purchased a single person hammock for $35.oo and use a tomato chair Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-46928895158382372872013-06-17T14:52:00.002-07:002013-06-17T14:52:59.526-07:00Shira's 8th Birthday Party Video
Shira's fantastic 8th birthday party!!! We are so thankful to still have Shira with us. We love you Shira!Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com2tag:blogger.com,1999:blog-2059138345661876330.post-13475866751561134552013-03-20T18:06:00.003-07:002013-03-20T18:10:35.738-07:00Shira Horseback Riding March 20, 2013Shira Riding at the Victoria Therapeutic Riding Association
https://www.youtube.com/watch?v=UAid716I-CM
Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com50tag:blogger.com,1999:blog-2059138345661876330.post-21543655108141964902013-01-07T14:20:00.000-08:002013-01-07T14:21:08.203-08:00What Makes A HeroHere is my latest article. Well an old article that has been published at http://www.elephantjournal.com/2013/01/what-makes-a-hero-brad-fisher/ Please feel free to share it if you like it.
Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com8tag:blogger.com,1999:blog-2059138345661876330.post-53929331362609497592012-12-31T11:04:00.000-08:002012-12-31T11:04:43.154-08:00QUOTES THAT HAVE CARRIED ME THROUGHMeaningful Quotations
“This book is dedicated to the health care organizations that not only raise money for research to seek cures for neeruomuscular diseases but also train and encourage health care professionals to provide the high-quality care necessary to prevent mortality while cures are being sought.” – Dr. John Bach (From the dedication in Dr. John Bach’s book Management of Patients withAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com1tag:blogger.com,1999:blog-2059138345661876330.post-47126216280256879382012-12-29T14:03:00.000-08:002012-12-29T14:06:16.885-08:00SHIRA STRETCHINGEvery day Shira has physio therapy performed on her. Stretching and movement on vibrating mats is done for about an hour and a half daily followed by standing in the afternoon. Here is a photo of Shira doing a supported bridge pose. We started slowly and have been doing this for some time so if you are going to try it with your child start with less of an angle. Remember to support the whole Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com2tag:blogger.com,1999:blog-2059138345661876330.post-61502785224025715152012-12-29T08:50:00.000-08:002012-12-29T10:14:15.503-08:00A GIRL OUR DAUGHTER“A girl, our daughter. She is a being more rare, more beautiful, purer, more perfect and more delicate than the wildest dream of a poet. We could never believe her to be our own flesh and blood. Her beauty is a well-spring of purest water-of-life, and to look upon her is to drink and drink and drink again…….
She is rare, a perfect creation, a work of purest art. A delicate flower that blooms Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com5tag:blogger.com,1999:blog-2059138345661876330.post-91872152403160430992012-12-28T23:40:00.000-08:002012-12-28T23:44:43.032-08:00WHAT IT MEANS TO BE A HEROThis is a re-post but it's exactly how I Feel At The
Moment
May 07, 2009
Lately i’ve been thinking a lot about what it means to be a hero.
http://www.wikipedia.com/ Definition: hero (male) and heroine (female) came to refer to characters (fictional or historical) that, in the face of danger and adversity or from a position of weakness, display courage and the will for self sacrifice – that isAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com1tag:blogger.com,1999:blog-2059138345661876330.post-45874320423056504832012-12-24T11:17:00.000-08:002012-12-24T11:17:31.308-08:00Happy Holidays And New Year To Our Family and FriendsAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-69631232449179448062012-12-21T12:59:00.000-08:002012-12-21T12:59:44.603-08:00
Fun with the family. Today was Shira's last day of school and she wanted to dress up like a princess. She told me to put on a suit which did and it fit! We lost our EA and have a new one starting on Jan 7, 2013. Change is so much tougher to deal with when your child has a severe illness. I think Shira handles change much easier than I do. Here's a photo of Shira with her old EA whose Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com1tag:blogger.com,1999:blog-2059138345661876330.post-77025296841763598872012-11-26T15:06:00.002-08:002012-11-26T15:06:18.544-08:00Shira Ice SkatingHere is a link to Shira Ice skating https://www.youtube.com/watch?v=B6oobWKAJr4&list=UUXRTTsTCf3b1_7Y6w7-Qskg&index=1&feature=plcpAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com6tag:blogger.com,1999:blog-2059138345661876330.post-7505977109397113042012-11-26T15:00:00.000-08:002012-11-26T15:01:09.811-08:00Spinal Muscular Atrophy Type 1Looking after a child with SMA Type 1 is intense. I would describe my experience delivering multi disciplinary intensive care 24/7 something like this. Imagine you are part of an expedition climbing Everest. As you are climbing you are relying on all of your gear and experience to keep you alive (in this case our child alive). One day a huge storm rolls in and half of your expedition is killedAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-58317901655500325332012-05-15T11:16:00.000-07:002012-05-15T11:18:20.207-07:00The AA Diet, Low Fiber and Fecal CompactionThe AA Diet, Low Fiber and Fecal Compaction
I would just like to start off by saying that I believe that most of you SMA Type 1 parents will be able to take their children off of Mirilax and other stool softeners by adding fiber and more hydration to your child's diet. There are always contradictions but I have calculated a lot of diets and the one thing missing from the AA Diet is an abundantAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com4tag:blogger.com,1999:blog-2059138345661876330.post-9929265969393649002012-04-01T11:25:00.003-07:002012-04-01T11:31:34.702-07:00Where's Molly?We have a few documentaries at home and Sammy is at an age where today he asked me if he could watch Where's Molly http://www.wheresmolly.net/ Years ago we were on the news advocating to get all the medical equipment we needed to keep Shira at home and care for her, get her injections to ward off illnesses etc. When we were on the news we had many calls from people that wanted to take Shira off Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com4tag:blogger.com,1999:blog-2059138345661876330.post-67372098804205080442011-11-13T10:02:00.000-08:002011-11-13T10:25:59.267-08:00Shira Playing In Her SlingAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com3tag:blogger.com,1999:blog-2059138345661876330.post-67176901087731092552011-09-07T09:24:00.000-07:002011-09-07T09:26:27.270-07:00Mogul Using Own $100 Million in Race to Cure Daughter Prompts Novartis AidVideohttp://www.bloomberg.com/vhttp://www.blogger.com/img/blank.gifideo/74900090/Mogul Using Own $100 Million in Race to Cure Daughter of Spinal Muscular Atrophy Prompts Novartis Aidby Brad Fisher on Wednesday, September 7, 2011 at 9:11amMogul Using Own $100 Million in Race to Cure Daughter Prompts Novartis Aid QBy Robert Langreth and Alex Nussbaum - Sep 6, 2011 9:01 PM PTBloomberg Markets Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-88552576052799278502011-08-17T12:58:00.000-07:002011-08-17T13:20:26.013-07:00Physio Therapy and The Vestibular SystemAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com1tag:blogger.com,1999:blog-2059138345661876330.post-15723106160507747472011-08-15T17:02:00.000-07:002011-08-15T19:53:07.409-07:00Shira and Maxine SingingAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-87317073734387474522011-08-10T07:29:00.000-07:002011-08-10T07:29:51.404-07:00Willows Beach - Access DeniedAnonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0tag:blogger.com,1999:blog-2059138345661876330.post-13803359050669900452011-08-04T13:28:00.000-07:002011-08-04T13:30:28.713-07:00Disabled visitors left high and dry on area beachesDisabled visitors left high and dry on area beaches Brad Fisher pushes daughter Shira’s stroller-wheelchair up an uneven pathway from Willows Beach.Emma Prestwich/News staffBy Emma Prestwich - Oak Bay NewsPublished: August 02, 2011 10:00 AMBrad Fisher pants as he heaves his daughter Shira’s specialized stroller-wheelchair up the steep, uneven sand path from Willows Beach.He enlists the help of Anonymoushttp://www.blogger.com/profile/00373066290179840383noreply@blogger.com0