Please Help Us Fund Raise!!!!!

I’m asking for your assistance. I am joining thousands of Canadians who don’t take their muscles for granted, by participating in Walk For Muscular Dystrophy 2010 to raise funds for Muscular Dystrophy Canada.

You can help me by making a secure online donation using your credit card. Click on the link below:

http://my.e2rm.com/personalPage.aspx?SID=2518511

Your gift helps Muscular Dystrophy Canada fund leading research to find the causes, treatments, prevention and cures for over 100 different neuromuscular disorders. Your donation also provides information, costly medical equipment, support and hope to over 50,000 Canadians living with neuromuscular disorders.

It takes 48 muscles to lift a baby and only a few to lift someone’s spirits.

Shira Receiving Beckman Motor Oral Therapy

Shira receives Beckman Motor Oral Therapy every day right after her CPT session in the morning.

Beckman Motor Oral Therapy Handout with Diagrams and Directions
http://www.asonginthisworld.com/images/client_pics/Beckman%20Motor%20Oral%20Therapy.PDF

Beckman Motor Oral Therapy Part 1
http://www.youtube.com/watch?v=KKxbexuV804

Part 2
http://www.youtube.com/watch?v=mY6ZujX-o_4

Part 3
http://www.youtube.com/watch?v=1-jMGPhJYrM

Part 4
http://www.youtube.com/watch?v=SGu9wCxE63g

Shira Yesterday and Today

Only one week left until the NJ Premiere of Time of my Life! (Wednesday March 10th)

Dear friends. If you live in NY or NJ and need some inspiration please go see this movie. It is about the life of Simcha Esther a woman that contracted cancer and fought the bravest fight you can imagine. I am proud to say that Simcha was my friend and an inspiration to me. Simcha left 3 children and a husband, she was in her early 40's. While she was alive Simcha set out to make a documentary about her fight with cancer and her deep return into her faith. Please pass this along to anyone you know!!

Only one week left until the NJ Premiere of Time of my Life! (Wednesday March 10th)

You can now buy tickets online: http://timeofmylife.us

(Please get your tix early. Last time we sold out and had to turn folks away.)

Blessings,

Yoni

PS - Also, please help us promote this film by posting to blogs, your email lists, facebook etc.

You may wish to include the following links in your emails, postings etc:
Link to the trailer: http://timeofmylife.us/Trailer.asp

Facebook event page: http://www.facebook.com/event.php?eid=248412489589&ref=ts

Link to the website and online ticketing: http://timeofmylife.us

Great Videos Explaining What SMA Is

Here are some excellent videos by FightSma that explain what SMA is. Shira has SMA type 1.

An Introduction to Spinal Muscular Atrophy - Dr. Bob Leshner
http://www.youtube.com/watch?v=-DgUVrvrNfs&feature=youtu.be

Spinal Muscular Atrophy Type 1 - Dr. Bob Leshner
http://www.youtube.com/watch?v=QRJ2pxVxUQw&feature=related

Spinal Muscular Atrophy Type 2 - Dr. Bob Leshner
http://www.youtube.com/watch?v=w_hyHQUwhco&feature=related

Spinal Muscular Atrophy Type 3 and Type 4 - Dr. Bob Leshner
http://www.youtube.com/watch?v=-Geojki_Hn8&feature=related

The physician-scientist, the state, and the oath: Thoughts for our times

"What, then, constitutes medical humanism? I would suggest four core values: First is the preciousness (or sanctity) of each human life. The second value is respect for human dignity. The third core value of humanism is the celebration of human diversity. Finally, the fourth core value of medical humanism is a sympathetic appreciation of the complexity of the human condition- how difficult it is for anyone to meet all of society's idealized expectations regarding individual and interpersonal behaviors, and how history and circumstances have conspired to make it especially difficult for some."~ The physician-scientist, the state, and the oath: Thoughts for our times Barry S. Coller

Read The Full Paper Here: Top right hand corner full text pdf
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1578617/

Sophia Doebbert and Dr. Mary Schroth, Our American Family Children's Hospital

There are some doctors that are real heroes. Dr. Mary Schroth is one of these heroes. Rarely do you see this amount of compassion from a Doctor but Dr. Schroth really cares about all her patients so much. Maxine flew to Wisconsin to meet with her because we were advised by Doctors at B.C. Children's Hospital not to contact U.S. doctors because they wouldn't be there for us in our time of need. Maxine was met at the door of the hospital by Dr. Schroth and the social worker. Dr. Schroth (the for profit doctor) spent 3 hours with Maxine.

While we witness children failing extubation all over the U.S. we see them flown to Wisconsin to be succesfully extubated. Doctor Schroth sees our children as human beings that are valued members of our society.

This video is of Sophia Doebbert from Minnesota. Though we haven't met her we feel very close to this family. Doug and Andrea have been great support for us sharing their knowledge and just being there for us, to listen to us. Watch this video

http://ourkids.uwhealth.org/stories/entry/beyond-expectations-the-sophia-dobbert-story/