It saddens me to say that SMA has taken another beautiful child from our presence. Please make a donation to www.smasupport.com or to a charity of your choice in honor of Lily. I have created a little video in honor of princess Lilly
PLEASE VISIT SHIRA'S WEB SITE AT www.asonginthisworld.com IF YOU ARE A NEW PARENT OF AN SMA CHILD OR AN EXPERIENCED PARENT WITH AN SMA CHILD PLEASE VISIT SHIRA'S WEB SITE AS INFORMATION IS UPDATED ALMOST DAILY.