relationships, of course, not only take time, they take 'quality time.'
This is especially true with children, where what matters is not only
the number of hours we spend but also the attention we give, the love we
show, the extent to which we enter into the child's world instead of
dragging him or her into our own. Schedules are fine at the office, but
children have a sense of time that is very different - and much more
natural. They don't know about appointments and parking meters and
living in the fast lane, and we cannot make them understand. All we can
do is hurry them along.
"We adults can learn to slow down
enough to enter their world; it's not their job to speed up and join
ours. Where is the hurry?"
The Vestibular System is often overlooked in the over all care of patients with Spinal Muscular Atrophy. Oral therapy, standing, swinging, laying on a massage mat, vibration etc all helps develop the vestibular system. If you build your own swing make sure you secure the swing through a ceiling joist. We purchased a single person hammock for $35.oo and use a tomato chair inside to support Shira along with a hensinger neck brace.